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Due to COVID-19 we currently cannot commit to our turnaround time of processing your Data Access Request.
We operate the best at our current possibilities, but cannot commit to any deadline.
All relevant documents related to applying for data can be found at the bottom of this page.
One of the main goals of the Hartwig Medical Foundation is to make our data available for scientific research. This scientific research needs to contribute to the amelioration of treatments for cancer patients, and has to serve public interest within the boundaries of privacy legislation. Data that is requested has to be necessary for the underlying research project.
There are four types of data request scenarios (and thereby different routes to follow to get permission to access the data):
For details about the available data for your research please consult our Data Guide.
If you wish to know more about the Data Access Request procedure, please see the Guiding Principles and Rules of Procedure at the bottom of this page. If you have any questions, please visit our FAQ or send an email to firstname.lastname@example.org.
A Licensee may also request for an extension of the term for the duration of which the Licencee may use the Licensed Data. When the term almost ends, our digital request environment will send a reminder to the Licensee. Through a new digital form in the digital request environment an extension can be requested. On request this may be inclusive of a one-time update of the Licensed Data. This request will again be assessed in accordance with the Rules of Procedure and the Guiding Principles of the Data Access Requests.
If the extension is granted the Licensee will receive a notification from our digital request environment
Approved Data Access Requests
If you wish to know which Data Access Requests have been submitted and approved please refer to our list of approved Data Access Requests.
Approval of the request (with description of the purpose, i.e. medical reason or original study purpose) should be collected from the Central study organization/PI and the Local study PI of the hospital the requester is affiliated with. Please use this standardised form for your request. The approved request can be sent to email@example.com and data will be prepared and made available through the Google CLoud Platform within 1 week.
In view of the European privacy legislation (i.e. the General Data Protection Regulation; “GDPR”), specific arrangements are made when the data are provided to a researcher in a country outside the European Economic Area, such as the standard contractual clauses for international transfers of personal data, as approved by the European Commission (the “EU Model Clauses”).
This means that:
Researchers making use of data provided by Hartwig Medical Foundation will have to explicitly acknowledge this in every publication by using at least the text below.
This publication and the underlying research are partly facilitated by Hartwig Medical Foundation and the Center for Personalized Cancer Treatment (CPCT) which have generated, analysed and made available data for this research.
For an exact description read our complete Publication Policy.