Patient consent
One of our main goals is to make our data available for scientific research. This scientific research must contribute to the improvement of treatment of cancer and must serve the public interest within the boundaries of privacy legislation. Only data that is required for the underlying research project may be requested.
Granting or withdrawing consent
Consent for storage and reuse of your data is voluntary. If you do give your consent, you can withdraw it at any time. You can do this by sending an email to privacy@hartwigmedicalfoundation.nl. If you withdraw your consent, your data will be removed from Hartwig Medical Foundation’s database and will no longer be used as described above. Withdrawing your consent will only affect the future use of your data. It is not possible to reverse any data disclosure.
Cancers will increasingly meet the definition of ‘rare’ in terms of the molecular profiles that make each tumor unique. The more research we can do into this, the better we will be able to offer patients personalized treatment in the future. Whole Genome Sequencing and studies like DRUP are making an important contribution to this.